A poignant story about unraveling the mystery of an untreatable illness. The Baxley family is a pillar of their community but a strange illness is taking family members at early ages. They consult with leading doctors but no diagnosis or treatment is in sight. As the youngest generation comes of age they must confront the prospect of the illness affecting them and make choices that could alter their lives forever.
In this book, Gina Kolata traces both the Baxley family and the science behind their family illness in expert fashion. This book reads more like a story than a case report and I think this is largely due to the structure she uses. The chapters alternate back and forth between the scientists working to decipher the cause of the illness and the family as they deal with its consequences. It moves at a really good pace and the alternating storyline keeps the reader engaged and wondering what happens next. This story is both poignant and tragic, and full of hope. I really enjoy a book where the author can take a very scientific subject and make it approachable for the average reader. I highly recommend.
Alinefromabook’s rating: 4.5 stars!